A Mother’s Story
A Mother’s Story, by Charlotte Benson As Christiane and I sat doing her homework one afternoon, hopel...
A Legacy For and Beyond Batten Disease
by Kevin Davies in Bio-IT World published March 16, 2010 ‘The day we got Christiane’s diagnosis was a h...
Bridging the Continents in the Battle Against Batten Disease
A Study Started Half a World Away May be the First Step Toward a Cure By Sandra Bretting in Shine, a mag...
A Mother’s Story
A Mother’s Story, by Charlotte Benson As I stared out of the window on my flight from Baton Rouge to...
Rare Disease Day – Retailer Support
In honor of Rare Disease Day on February 28th The following retailers are donating a portion of their pro...
Westbank moms hit the road to battle Batten Disease
Three Austin-based runners help spread the word about Batten disease. by Dane Anderson in Westlake Picay...
NIH announced expansion of the Rare Diseases Clinical Research Network
Good news in the fight against Batten Disease and other rare diseases. The NIH announced expansion of the...