Beyond Batten Disease Foundation

Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.

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  • About Us
    • About the Foundation

      • Mission and History
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      • Bind Up Batten
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      • Delaney’s Dream
      • Hugs for Hudson
      • Iron Will
      • The Isla Edwards Research Fund
      • Nathan’s Batten Battle
      • Rare Sisters
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      • Tyler’s Mission
      • Wheelers Warriors Research Fund
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    • BBDF’s Role and Impact

      • Latest Updates
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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Understanding Batten
    • About Batten Disease

      • What is Batten?
      • Diagnosis/Symptoms
      • Prognosis
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      • Living with Batten
    • Family Stories

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    • Contact Us

      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Research
    • What We Know

      • State of the Science
      • CLN3 Gene
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    • Foundation Driven

      • Our Strategy
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      Beyond Batten Disease Foundation
      Phone: 512.275.2600
      Email Us

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    • UPCOMING EVENTS

  • A Mother’s Story
  • BBDF Blog

Newsroom

Beyond Batten Disease Foundation  ⁄  Newsroom
6 Feb 2012

Keith Urban lends talents to raise money for Austin-based foundation aimed at curing rare genetic disease affecting children

February 6, 2012
BeyondBatten
News
by Meredith Rainey in CultureMap Austin published February 6, 2012 Our job as parents is to protect our...
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3 Feb 2012

Date Night with Keith Urban Auction Preview

February 3, 2012
BeyondBatten
News
LIVE AUCTION PREVIEW Formula 1 Package 2 premium reserved seats for all three days of the Formula 1 Un...
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2 Feb 2012

Date Night: Craig & Charlotte Benson

February 2, 2012
BeyondBatten
News
by Lauren Smith Ford in Tribeza published January 25, 2012 By Day: Founders of the Beyond Batten Diseas...
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1 Feb 2012

The Battle Against Batten Disease

February 1, 2012
BeyondBatten
News
On KTBC Fox 7 Published February 1, 2012 Country Singer Keith Urban will be in Austin on February 10 to...
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20 Jan 2012
Research Update 2012

Research Update 2012

January 20, 2012
BeyondBatten
News
...
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13 Jan 2012

Country singer joins Austin dad’s effort in finding cure for disease

January 13, 2012
BeyondBatten
News
By KVUE staff on KVUE.com published January 13, 2012 An Austin father is on a desperate search to fin...
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18 Nov 2011

November 2011

November 18, 2011
BeyondBatten
News
CLICK HERE...
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2 Nov 2011

Country Music Superstar Keith Urban Comes to Austin for Feb. 10 Gala Supporting Beyond Batten Disease Foundation

November 2, 2011
BeyondBatten
News, Press Releases
Austin, TX (PRWEB) November 02, 2011 Keith Urban – among country music’s biggest stars and a nominee for...
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12 Aug 2011

August 2011

August 12, 2011
BeyondBatten
News
CLICK HERE...
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21 Jul 2011

Designing a Plan for Drug Discovery in Rare Pediatric Neurodegnerative Disease

July 21, 2011
BeyondBatten
News
by Danielle Kerkovich, Ph.D. and Amy Drew published July 21, 2011 Editor’s Note: There are currently no...
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Recent Posts

  • Theranexus and Beyond Batten Disease Foundation Announce Strong Positive Real-World Data Supporting Batten-1 Efficacy for the Treatment of Batten Disease
  • Family Research Calls – May 13 & 15
  • Batten Disease Global Research Initiative Announces Inaugural Grant Recipients
  • Batten-1 May Preserve Vision with Juvenile Batten Disease
  • Update on the Theranexus’ Batten-1 project in CLN3 Batten’s disease

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Categories

  • Research
  • News
  • Press Releases
  • A Mother's Story
  • BE Project
  • Family Stories
  • Videos

Contact Us

  • 512.275.2600
  • info@beyondbatten.org
  • 3305 Steck Ave., Suite 200, Austin Texas, 78757

Connect With Us

What’s New?

  • Theranexus and Beyond Batten Disease Foundation Announce Strong Positive Real-World Data Supporting Batten-1 Efficacy for the Treatment of Batten Disease May 14, 2025
  • Family Research Calls – May 13 & 15 April 30, 2025
  • Batten Disease Global Research Initiative Announces Inaugural Grant Recipients April 10, 2025

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