Beyond Batten Disease Foundation

Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.

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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Understanding Batten
    • About Batten Disease

      • What is Batten?
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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Research
    • What We Know

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      Phone: 512.275.2600
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  • A Mother’s Story
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Newsroom

Beyond Batten Disease Foundation  ⁄  Newsroom
15 Jul 2015

Beyond Batten Disease Foundation announces Craig Benson’s appointment to the NRI International Advisory Board

July 15, 2015
BeyondBatten
News, Press Releases
Austin, TX - July 15, 2015 - Beyond Batten Disease Foundation (BBDF) is pleased to announce Craig Benson’...
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9 Jun 2015

Beyond Batten Disease Foundation Renowned Italian Researcher Publishes Groundbreaking Research in Top International Scientific Publication

June 9, 2015
BeyondBatten
News, Press Releases
Austin, Texas – June 9, 2015 – Beyond Batten Disease Foundation (BBDF) announces groundbreaking research...
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3 Jun 2015

May 2015

June 3, 2015
BeyondBatten
News
CLICK HERE...
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29 May 2015

Possible

May 29, 2015
BeyondBatten
A Mother's Story
Have you ever wondered if you are relevant, significant, or if anything you do really matters? Sometimes...
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18 May 2015

Beyond Batten Disease Foundation Joins Innovative Network of Venture Philanthropies

May 18, 2015
BeyondBatten
News, Press Releases
Austin, Texas – May 12, 2015 – Beyond Batten Disease Foundation has become a participating organization o...
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10 Apr 2015

5th annual ‘Run to the Sun’ helps girl with rare disease

April 10, 2015
BeyondBatten
News
By Quita Culpepper on KVUE Published on April 10, 2015 AUSTIN - A run will be held this weekend to...
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9 Apr 2015

Event to raise awareness about Batten disease

April 9, 2015
BeyondBatten
News
On Fox 7 News Aired April 9, 2015 Watch Video HERE....
Read More
30 Mar 2015

Beyond Batten Disease Foundation and the New York Academy of Sciences Release a New Podcast Revealing Innovative Ways to Cure Rare Disease

March 30, 2015
BeyondBatten
News, Press Releases
Austin, Texas – Beyond Batten Disease Foundation (BBDF) and the New York Academy of Sciences (NYAS) are w...
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25 Mar 2015

Platform for Engaging Everyone Responsibly Awardees Announced

March 25, 2015
BeyondBatten
News, Press Releases
WASHINGTON, DC - March 24, 2015 - Today Genetic Alliance announced the fifteen awardees for Phase I of it...
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18 Mar 2015

March 2015

March 18, 2015
BeyondBatten
News
CLICK HERE...
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Recent Posts

  • Theranexus and Beyond Batten Disease Foundation Announce Strong Positive Real-World Data Supporting Batten-1 Efficacy for the Treatment of Batten Disease
  • Family Research Calls – May 13 & 15
  • Batten Disease Global Research Initiative Announces Inaugural Grant Recipients
  • Batten-1 May Preserve Vision with Juvenile Batten Disease
  • Update on the Theranexus’ Batten-1 project in CLN3 Batten’s disease

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Categories

  • Research
  • News
  • Press Releases
  • A Mother's Story
  • BE Project
  • Family Stories
  • Videos

Contact Us

  • 512.275.2600
  • info@beyondbatten.org
  • 3305 Steck Ave., Suite 200, Austin Texas, 78757

Connect With Us

What’s New?

  • Theranexus and Beyond Batten Disease Foundation Announce Strong Positive Real-World Data Supporting Batten-1 Efficacy for the Treatment of Batten Disease May 14, 2025
  • Family Research Calls – May 13 & 15 April 30, 2025
  • Batten Disease Global Research Initiative Announces Inaugural Grant Recipients April 10, 2025

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