Austin American Statesman – Austin boy trying to raise $1 million for Batten disease treatment for sister
When his parents set out to raise $6 million in two years to fund a Food and Drug Administration clinical...
KXAN: Teen sets $1M goal to fight sister’s fatal disease
WATCH THE FULL STORY HERE...
Garland Benson: KVUE Daybreak All Star!
Garland Benson was recognized by the ABC News affiliate, KVUE for his efforts to raise $1 million to fund...
North Carolina Golf Tournament Raises Close to $10,000 for Batten Research
Robert Price hosted a golf tournament at Reedy Creek Golf Course in Four Oaks, NC that raised close to $1...
Weston and John ask for BBDF donations in lieu of gifts for birthday
We're so grateful to Weston Ezell and his friend, John, for asking for donations to BBDF in lie...
We’ve Reached $3.3 million on the Be Project!
The Be Project is Beyond Batten Disease Foundation's 24-month campaign to raise $6 million to fund the tr...
Hudson Phillips enjoyed a day watching the Columbus Blue Jackets
Hudson Phillips of our affiliate fund, Hugs for Hudson, got to enjoy a day watching the Columbus Blue Jac...
A Mother’s Story: Beyond Fear and Doubt – by Charlotte Benson
Robert Schuller once said, “I’d rather attempt to do something great and fail, than attempt to do nothing...
Youth Leadership Committee Buzz Campaign
The BBDF Youth Leadership Committee has been hard at work on their BUZZ campaign! The committee places sw...
Admirals Club of Austin donates $10,000 to BBDF
We are so grateful for the incredibly generous donation made to Beyond Batten Disease Foundation by the A...