Dear Batten community,

The BDSRA Foundation and Kennedy Krieger Institute are conducting an important community-wide survey to help inform and drive research priorities and investment in Batten disease.

Parents, carers, clinicians, researchers, industry, policymakers, allied health, support workers, educators or anyone with an interest in Batten disease are warmly invited to participate in this anonymous survey and to share with their networks. Hurry! the deadline to take the survey is this week.

Please complete the survey by May 24, 2024.

Learn more by reading this flyer, and complete the survey by clicking the button below.

Our sincerest thanks for your input into this important initiative.

Warm regards,

Mary Beth Kiser


Take the Survey

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