Beyond Batten Disease Foundation

Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.

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      Beyond Batten Disease Foundation:

      PO Box 50221
      Austin, TX 78763
      Phone: 512-275-2600
      Fax: 512-637-6333
      info@beyondbatten.org

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      Beyond Batten Disease Foundation:

      PO Box 50221
      Austin, TX 78763
      Phone: 512-275-2600
      Fax: 512-637-6333
      info@beyondbatten.org

      Submit an Inquiry »

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    • Contact Dr. Danielle Kerkovich

      Danielle M. Kerkovich, Ph.D.
      Phone: 202-812-6462
      Email Danielle

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    • Introducing the

      BBDF BE Project

      a campaign to fund the treatment for Batten disease

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    • Contact Us

      Beyond Batten Disease Foundation:

      PO Box 50221
      Austin, TX 78763
      Phone: 512-275-2600
      Fax: 512-637-6333
      info@beyondbatten.org

      Submit an Inquiry »

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Staff

Beyond Batten Disease Foundation  ⁄  Our Team  ⁄  Staff

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Our Team

Mary Beth Kiser

Mary Beth Kiser

President and CEO

Staff

Danielle M. Kerkovich, PhD

Principal Scientist

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Jessica Kemp-Park, D.C.

Director of the Will Herndon Research Fund

Staff

Contact Us

  • 512-275-2600
  • info@beyondbatten.org
  • PO Box 50221
    Austin, TX 78763
  • Mon to Fri - 8:30am to 5:30pm

What’s New?

  • December Update – 22 Days and Oh So Close!! December 13, 2018
  • Dr. Marco Sardiello’s Research on Batten Disease Paves Way for New Treatments December 13, 2018
  • Thank You to FOX 7 News’s Amanda Salinas for Sharing Garland’s Story! December 12, 2018

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