Beyond Batten Disease Foundation

Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.

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  • About Us
    • About the Foundation

      • Mission and History
      • Board of Directors
      • Staff
      • Youth Leadership Committee
      • Founders Circle
      • Internships and Service Hours
    • Funds

      • Bind Up Batten
      • Charles ‘Wheeler’ Stecker Research Fund
      • Chase The Cure
      • Delaney’s Dream
      • Hugs for Hudson
      • Rare Sisters
      • Sofia’s Dream
      • Tyler’s Mission
      • Will Herndon Fund
    • BBDF’s Role and Impact

      • Accomplishment Timeline
      • The Be Project
      • BE a Hero
      • BBDF 101 Treatment
    • Contact Us

      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      [email protected]

      Submit an Inquiry »

  • Understanding Batten
    • About Batten Disease

      • What is Batten?
      • Diagnosis/Symptoms
      • Prognosis
      • Screening
      • Living with Batten
    • Family Stories

      • Family Videos
      • A Mother’s Story
      • Share your Story
      • Batten Map
    • Contact Us

      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      [email protected]

      Submit an Inquiry »

  • Research
    • What We Know

      • State of the Science
      • CLN3 Gene
      • Screening
    • Foundation Driven

      • Our Strategy
      • Research Activities
      • BBDF 101
    • For Researchers

      • About Funding
      • Forms and Instructions
      • Resources
    • Contact Dr. Danielle Kerkovich

      Danielle M. Kerkovich, Ph.D.
      Phone: 202-812-6462
      Email Danielle

  • Get Involved
    • OVERVIEW

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    • UPCOMING EVENTS

  • BBDF Blog

Staff

Beyond Batten Disease Foundation  ⁄  Our Team  ⁄  Staff

Team Group

  • 500K
  • Board of Directors
  • Staff

Staff

Our Team

Mary Beth Kiser

Mary Beth Kiser

President and CEO

Staff

Emily Armstrong

Communications Manager

Staff

Danielle M. Kerkovich, PhD

Principal Scientist

Staff

Jessica Kemp-Park, D.C.

Director of the Will Herndon Research Fund

Staff

Contact Us

  • 512.275.2600
  • [email protected]
  • 3305 Steck Ave., Suite 200, Austin Texas, 78757

What’s New?

  • BBDF-101 Announcement August 26, 2020
  • BBDF-101 Announcement December 12, 2019
  • A Mother’s Story November 7, 2019

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