Beyond Batten Disease Foundation

Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.

DONATE

Toggle menu

Skip to content
  • About Us
    • About the Foundation

      • Mission and History
      • Board of Directors
      • Staff
      • Youth Leadership Committee
      • Founders Circle
      • Internships and Service Hours
    • Funds

      • Bind Up Batten
      • Charles ‘Wheeler’ Stecker Research Fund
      • Chase The Cure
      • Delaney’s Dream
      • Hugs for Hudson
      • Rare Sisters
      • Sofia’s Dream
      • Tyler’s Mission
      • Will Herndon Fund
    • BBDF’s Role and Impact

      • Latest Updates
      • The Be Project
      • BE a Hero
      • BBDF 101 Treatment
    • Contact Us

      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Understanding Batten
    • About Batten Disease

      • What is Batten?
      • Diagnosis/Symptoms
      • Prognosis
      • Screening
      • Living with Batten
    • Family Stories

      • Family Videos
      • A Mother’s Story
      • Share your Story
      • Batten Map
    • Contact Us

      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Research
    • What We Know

      • State of the Science
      • CLN3 Gene
      • Screening
    • Foundation Driven

      • Our Strategy
      • Research Activities
      • BBDF 101
    • For Researchers

      • About Funding
      • Forms and Instructions
      • Resources
    • Contact Us

      Beyond Batten Disease Foundation
      Phone: 512.275.2600
      Email Us

  • Get Involved
    • OVERVIEW

      • Donate
      • Create a Fundraising Page
      • Create a Fund
      • Volunteer
    • UPCOMING EVENTS

      • Wild For Hope
      • Hope on the Green
  • BBDF Blog

Staff

Beyond Batten Disease Foundation  ⁄  Our Team  ⁄  Staff

Team Group

  • Staff
  • Board of Directors
  • 500K

Staff

Our Team

Mary Beth Kiser

Mary Beth Kiser

President and CEO

Staff

Emily Armstrong

Communications Manager

Staff

Danielle M. Kerkovich, PhD

Principal Scientist

Staff

Jessica Kemp-Park, D.C.

Director of the Will Herndon Research Fund

Staff

Contact Us

  • 512.275.2600
  • info@beyondbatten.org
  • 3305 Steck Ave., Suite 200, Austin Texas, 78757

Connect With Us

What’s New?

  • Run to the Sun 2021 Thank You! April 2, 2021
  • BBDF Announces Agreement with Actelion Pharmaceuticals Ltd to Provide Drug Product for BBDF-101 March 2, 2021
  • BBDF and Theranexus collaborate to publish journal February 5, 2021

Join Our Mailing List

Sign up to get interesting news and updates delivered to your inbox.


GO!

The Latest on Instagram

Something is wrong.
Instagram token error.
  • About Us
  • Services
  • Privacy
Copyright © 2021 Beyond Batten Disease Foundation. All rights reserved.
Website Design by Huckster Design.