Beyond Batten Disease Foundation

Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.

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  • About Us

    • About the Foundation

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      Hugs for Hudson

      Read Press Release »

      ForeBatten

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    • BBDF’s Role and Impact

      • Overview
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    • Contact Us

      Beyond Batten Disease Foundation:

      PO Box 50221
      Austin, TX 78763
      Phone: 512-275-2600
      Toll Free: 1-877-6BATTEN
      Fax: 512-637-6333
      info@beyondbatten.org

      Submit an Inquiry »

  • Understanding Batten

    • About Batten Disease

      • What is Batten?
      • Diagnosis/Symptoms
      • Prognosis
      • Screening
      • Living with Batten

    • Family Stories

      • Family Videos
      • A Mother’s Story
      • Share your Story
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    • Contact Us

      Beyond Batten Disease Foundation:

      PO Box 50221
      Austin, TX 78763
      Phone: 512-275-2600
      Toll Free: 1-877-6BATTEN
      Fax: 512-637-6333
      info@beyondbatten.org

      Submit an Inquiry »

  • Research

    • What We Know

      • Screening
      • State of the Science
      • CLN3 Gene
      • Drug Targeting the Lysosome

    • Foundation Driven

      • Our Strategy
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    • For Researchers

      • About Funding
      • Forms and Instructions
      • Resources

    • Contact Dr. Danielle Kerkovich

      Danielle M. Kerkovich, Ph.D.
      Phone: 202-812-6462
      Email Danielle

  • Get Involved

    • OVERVIEW

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    • UPCOMING EVENTS

      • HOPE Under the Stars
      • Family Night
      • 3rd Annual A Cure in the Nick of Time
  • Be Project

    • Introducing the

      BBDF BE Project

      a campaign to fund the treatment for Batten disease

      Read More »

    • Who Will You Be?

      • BE an Amazon
      • BE the Change
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      • Be First Donors

    • Contact Us

      Beyond Batten Disease Foundation:

      PO Box 50221
      Austin, TX 78763
      Phone: 512-275-2600
      Toll Free: 1-877-6BATTEN
      Fax: 512-637-6333
      info@beyondbatten.org

      Submit an Inquiry »

Staff

Beyond Batten Disease Foundation > Our Team > Staff

Team Group

  • Board of Directors
  • Staff

Staff

Our Team

Mary Beth Kiser

Mary Beth Kiser

President and CEO

Staff

Danielle M. Kerkovich, PhD

Principal Scientist

Staff

Brittany Thomas

Communications Manager

Staff
Kasandra Keyes

Kasandra Keyes

Marketing Manager

Staff

Contact Us

  • 512-275-2600
  • info@beyondbatten.org
  • PO Box 50221
    Austin, TX 78763
  • Mon to Fri - 8:30am to 5:30pm

A 501(c)(3) tax-exempt organization

Latest from the Newsroom

  • Research Update from Dr. Marco Sardiello June 1, 2017
  • May Newsletter May 30, 2017

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