Beyond Batten Disease Foundation

Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.

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  • About Us

    • About the Foundation

      • Mission and History
      • Staff
      • Board of Directors
      • Development Board
      • Youth Leadership Committee
      • Founders Circle
      • Internships and Service Hours

    • Funds

      Will Herndon Fund

      Learn More »

      Hugs for Hudson

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      Tyler's Mission

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      Bind Up Batten

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      Chase The Cure

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      Rare Sisters

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      Sofia's Dream

      Learn More »

    • BBDF’s Role and Impact

      • 2016/2017 Annual Report
      • Overview
      • Accomplishment Timeline
      • Latest Update
      • Video Updates

    • Contact Us

      Beyond Batten Disease Foundation:

      PO Box 50221
      Austin, TX 78763
      Phone: 512-275-2600
      Fax: 512-637-6333
      info@beyondbatten.org

      Submit an Inquiry »

  • Understanding Batten

    • About Batten Disease

      • What is Batten?
      • Diagnosis/Symptoms
      • Prognosis
      • Screening
      • Living with Batten

    • Family Stories

      • Family Videos
      • A Mother’s Story
      • Share your Story
      • Batten Map

    • Contact Us

      Beyond Batten Disease Foundation:

      PO Box 50221
      Austin, TX 78763
      Phone: 512-275-2600
      Fax: 512-637-6333
      info@beyondbatten.org

      Submit an Inquiry »

  • Research

    • What We Know

      • State of the Science
      • CLN3 Gene
      • Screening

    • Foundation Driven

      • Our Strategy
      • Research Partnerships
      • Research Activities

    • For Researchers

      • About Funding
      • Forms and Instructions
      • Resources

    • Contact Dr. Danielle Kerkovich

      Danielle M. Kerkovich, Ph.D.
      Phone: 202-812-6462
      Email Danielle

  • Get Involved

    • OVERVIEW

      • Donate
      • Create a Fundraising Page
      • Create a Fund
      • Volunteer

    • UPCOMING EVENTS

      • Run to the Sun Fun Run
      • Batten Bash
      • Taking a Swing at Batten
      • Inspire Run 5K
  • Be Project

    • Introducing the

      BBDF BE Project

      a campaign to fund the treatment for Batten disease

      Read More »

    • Who Will You Be?

      • BE an Amazon
      • BE the Change
      • BE a Connector
      • BE a Donor
      • BE a Hero
      • BE the Hope

    • BE RECOGNIZED

      • Be First Donors

    • Contact Us

      Beyond Batten Disease Foundation:

      PO Box 50221
      Austin, TX 78763
      Phone: 512-275-2600
      Fax: 512-637-6333
      info@beyondbatten.org

      Submit an Inquiry »

  • BBDF Blog

Staff

Beyond Batten Disease Foundation  ⁄  Our Team  ⁄  Staff

Team Group

  • 500K
  • Board of Directors
  • Staff

Staff

Our Team

Mary Beth Kiser

Mary Beth Kiser

President and CEO

Staff

Danielle M. Kerkovich, PhD

Principal Scientist

Staff

Jessica Kemp-Park, D.C.

Director of the Will Herndon Research Fund

Staff

Contact Us

  • 512-275-2600
  • info@beyondbatten.org
  • PO Box 50221
    Austin, TX 78763
  • Mon to Fri - 8:30am to 5:30pm

What’s New?

  • 4th Annual Run to the Sun Fun Run Rescheduled for Friday, Feb. 22, 2019 February 8, 2019
  • BBDF Welcomes Sophia’s Dream February 7, 2019
  • Thank you from the Bensons January 28, 2019

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