Our Mission

Beyond Batten Disease Foundation was established to eradicate Batten disease.

We seek to accomplish our mission in two ways:

Raise Awareness

And money to accelerate reasearch to find a cure for Batten disease

Develop a Blood Test

An easy and inexpensive test to detect the gene mutations for Batten disease

and hundreds of other rare conditions like it, that claim the lives of thousands of children each year.

Development Board

These active volunteers and community leaders serve as ambassadors to help us grow and accomplish our mission by extending the reach of our community and raising awareness and funds for research to find a cure for juvenile Batten disease.

In October 2013, charter members joined the Beyond Batten Disease Foundation Development Board for a two year term. These active volunteers and community leaders will serve as ambassadors to help us grow and accomplish our mission by extending the reach of our community, and raising awareness and funds for research to find a cure for juvenile Batten disease.

If you are interested in becoming a member of BBDF’s Development Board, please contact info@beyondbatten.org. Nominations will take place in the Spring.