About the Foundation

Our Mission

Beyond Batten Disease Foundation was established to eradicate Batten disease. We seek to accomplish our mission in two ways:

  1. Raise awareness and money to accelerate research to find a cure for Batten disease. Learn more »
  2. Develop an easy and inexpensive blood test to detect the gene mutations for Batten disease, and hundreds of other rare conditions like it, that claim the lives of thousands of children each year. Learn more »