We seek to accomplish our mission in two ways:
In October 2013, charter members joined the Beyond Batten Disease Foundation Development Board for a two year term. These active volunteers and community leaders will serve as ambassadors to help us grow and accomplish our mission by extending the reach of our community, and raising awareness and funds for research to find a cure for juvenile Batten disease.
If you are interested in becoming a member of BBDF’s Development Board, please contact firstname.lastname@example.org. Nominations will take place in the Spring.