Beyond Batten Disease Foundation

Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.

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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

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    • About Batten Disease

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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

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      Phone: 512.275.2600
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In the News!

Beyond Batten Disease Foundation  ⁄  BBDF Blog  ⁄  News  ⁄  In the News!
12Jun2018

2018 has been filled with fundraising, partnership and advocacy here at BBDF. With that said we wanted to share some of the media coverage for the foundation and our family partners around the country!

Chase the Cure Radio Interview on Frankie and Jess, 97.1

 

Austin Family Magazine write up on Be a Hero

The Klein Family Story on 13ABC WGTV

June 12, 2018 News
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A 501(c)(3) tax-exempt organization

Connect With Us

Contact Us

  • 512.275.2600
  • info@beyondbatten.org
  • 3305 Steck Ave., Suite 200, Austin Texas, 78757

Connect With Us

What’s New?

  • Family Research Calls – May 13 & 15 April 30, 2025
  • Batten Disease Global Research Initiative Announces Inaugural Grant Recipients April 10, 2025
  • Batten-1 May Preserve Vision with Juvenile Batten Disease December 3, 2024

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