Support the Isla Edwards Research Fund as an Annual Advocate – $5,000

Today the Beyond Batten Disease Foundation (BBDF) is advancing a treatment for Batten disease discovered by BBDF-funded researchers. The FDA has approved a clinical trial in patients to test BBDF-101, a therapy proven to slow the progression of CLN3 disease in Batten models. BBDF also continues to fill the gaps in funding, create tools and resources to elevate the science and bring together affected families and other Batten organizations to have the biggest impact. As we have chosen to partner with BBDF, your support of the Isla Edwards Research Fund makes all of this possible.


With your $5,000 donation, you will receive:


Company logo on newsletter updates
Quarterly “thank you” acknowledgement on social media
Logo on fund webpage

*additional opportunities at in-person fundraising events as scheduled