Recognizing the many young philanthropists in our community, Beyond Batten Disease Foundation created the Youth Leadership Committee in October 2014. These young volunteer leaders serve as liaisons to their schools and neighborhoods, helping us grow and accomplish our mission of raising awareness and funds for research to find a cure for juvenile Batten disease.

If you are interested in becoming a member of BBDF’s Youth Leadership Committee, please contact Nominations will take place in Spring 2017.

2016 Youth Leadership Committee

Executive Committee

President: Susie McCartt

Member at Large: Molly Smith

Community Outreach: Ellen Campbell

Community Outreach: Merritt Fish

Community Outreach: Laney Phillips

Event Chair: George Copley

Event Chair: Claire Gill

Event Chair: Mary Frances Kocurek

Event Chair: Molly Pitts

Media Chair: Katie Chandler

Media Chair: Lawson Fish

Grant Writing Chair: Grace Gilmour

Grant Writing Chair: Ella Nasi

Walt Alexander

Chris Ault

Caleb Barton

Christiane Benson

Emma Breckwoldt

Buddy Brumley

Ellie Brumley

Joe Bryant

Max Burnett

Mary Carrigee

Mallory Clifton

Jack Collins

Clara Grace Cowden

Marilee Cowden

Steven Crider

Keaton Cruzcosa

Riley Cruzcosa

Caroline Daniel

Casey Daves

Drew Dowell

Carlisle Dunnam

Annabel Dwyer

Emily Dwyer

Wyatt Ezell

Ellen Hagen

Andrew Hojel

Thad Hutcheson

Reagan Jackson

Will Janek

Sophie Johnson

Taylor Josey

Max Keliehor

Allie Kemmerer

Cole Kocurek

Will Kocurek

Jaxon Kronenberg

Casron Kurad

Olivia Late

Cal Long

Ellie McCartt

Grace Meinzer

Ainsley Merritt

Annabel Merritt

Carolina Mountain

Jackson Mountain

Mary Margaret Oden

Brooke Peterman

Claire Peterman

John Pike

Natalie Prideaux

Helena Putman

Jackson Reimers

Beatrix Roberts

John Schneider

Anna Claire Smith

Will Snell

Ireland Tendler

Cameron Thompson

Lily Tickle

Michael Toomey

Walker Weeden

Anna Whitehead

Lee Whitehead

Claudia Whittlesey

Jack Windham

Natalie Youngblood

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