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About Us
- About the Foundation
- Funds
- BBDF’s Role and Impact
- Contact Us
  
  Beyond Batten Disease Foundation:
  
  3305 Steck Ave., Suite 200
  Austin, TX 78757
  Phone: 512.275.2600
  info@beyondbatten.org
  
  Submit an Inquiry »
Understanding Batten
- About Batten Disease
- Family Stories
- Contact Us
  
  Beyond Batten Disease Foundation:
  
  3305 Steck Ave., Suite 200
  Austin, TX 78757
  Phone: 512.275.2600
  info@beyondbatten.org
  
  Submit an Inquiry »
Research
- What We Know
- Foundation Driven
- For Researchers
- Contact Us
  
  Beyond Batten Disease Foundation
  Phone: 512.275.2600
  Email Us
Get Involved
- OVERVIEW
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  - HOPE on the Green Golf Tournament
  - The Gaine Invitational
A Mother’s Story
BBDF Blog

Emma R.

28Jun2016

Address:

Houston, TX

June 28, 2016

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NORD Batten Disease Patient Assistance Program Reminder August 14, 2024
We Need Your Help Re: Off-Label Miglustat Use July 23, 2024
Batten Disease Research Priorities (Phase 2) – YOUR HELP REQUESTED July 10, 2024

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