On WDNU.com
Published October 19, 2014
Blue extensions and $20 haircuts drew folks to Hair Crafters Sunday afternoon for the 18th Annual “Cut for a Cause.”
This year the money raised goes towards research for Batten disease, a rare and fatal neurodegenerative disorder that begins in child hood.
NewsCenter 16 has covered the story of Tyler Allman, and “Team Tyler” who have championed awareness for the illness.
Tyler has been fighting batten disease for five years now; he is confined to a wheelchair.
There is no cure for Batten.
However, fundraisers like “Cut for a Cause” help spread awareness to this type of rare disease.
Royer Allman and Heather Allman, “Team Tyler” parents, say, “it was definitely a curveball at first. Tyler was a typical boy that played t-ball was just a normal child, but now he suffers from seizures, he’s blind, he’s lost all of his mobility, so it is a neurodegenerative disease. Today is better than tomorrow, but we just embrace each day and he has such an amazing spirit. And that’s our goal is to keep doing that for him as well as raising money and awareness.”
Hair Crafters raised more than $800 within the first hour of Sunday’s event, and hoped to raise much more throughout the day.