On KTBC Fox 7
Published on May 3, 2011
Ryon Talbot of Pure Austin Fitness and Lance Thompson, a participant in the event, stopped by Good Day to talk about the Beyond Batten Relay.
Batten disease is a fatal neurodegenerative disorder that takes away childhood, then takes away the child. The Beyond Batten Foundation was established to eradicate Batten disease. They seek to accomplish this by:
- Raising awareness and money
to accelerate research and finda cure - Develop an easy and inexpensive blood test to detect the gene mutations for Batten’s and hundreds of other rare conditions like it.
Event details:
Run to the Sun
90-plus miles from Austin to Enchanted Rock
Relay teams of 8
Goal: to raise $125,000
http://www.myfoxaustin.com/story/18298409/get-movin-monday-beyond-batten-relay