Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.

DONATE

Just type and press 'enter'

Toggle menu

Skip to content

About Us
- About the Foundation
- Funds
- BBDF’s Role and Impact
- Contact Us
  
  Beyond Batten Disease Foundation:
  
  3305 Steck Ave., Suite 200
  Austin, TX 78757
  Phone: 512.275.2600
  info@beyondbatten.org
  
  Submit an Inquiry »
Understanding Batten
- About Batten Disease
- Family Stories
- Contact Us
  
  Beyond Batten Disease Foundation:
  
  3305 Steck Ave., Suite 200
  Austin, TX 78757
  Phone: 512.275.2600
  info@beyondbatten.org
  
  Submit an Inquiry »
Research
- What We Know
- Foundation Driven
- For Researchers
- Contact Us
  
  Beyond Batten Disease Foundation
  Phone: 512.275.2600
  Email Us
Get Involved
- OVERVIEW
- UPCOMING EVENTS
A Mother’s Story
BBDF Blog

IMG_0059 (1)

Beyond Batten Disease Foundation ⁄ Events ⁄ Run to the Sun Fun Run ⁄ IMG_0059 (1)

Published on October 3, 2017 in Run to the Sun Fun RunFull resolution (2304 × 1536)

← Previous Next →

Leave a Reply Cancel reply

Your email address will not be published. Required fields are marked *

Δ

Search for:

Subscribe to our Blog

Categories

A Mother's Story BE Project Family Stories News Press Releases Research Videos

A 501(c)(3) tax-exempt organization

Connect With Us

Contact Us

512.275.2600
info@beyondbatten.org
3305 Steck Ave., Suite 200, Austin Texas, 78757

Connect With Us

What’s New?

Batten-1 May Preserve Vision with Juvenile Batten Disease December 3, 2024
Update on the Theranexus’ Batten-1 project in CLN3 Batten’s disease November 20, 2024
NORD Batten Disease Patient Assistance Program Reminder August 14, 2024

Join Our Mailing List

Sign up to get interesting news and updates delivered to your inbox.

Copyright © 2025 Beyond Batten Disease Foundation. All rights reserved. EIN: 26-3223661