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  Beyond Batten Disease Foundation:
  
  3305 Steck Ave., Suite 200
  Austin, TX 78757
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  Beyond Batten Disease Foundation:
  
  3305 Steck Ave., Suite 200
  Austin, TX 78757
  Phone: 512.275.2600
  info@beyondbatten.org
  
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Kelley and Tom Daniel

Beyond Batten Disease Foundation ⁄ Our Team ⁄ 500K ⁄ Kelley and Tom Daniel

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info@beyondbatten.org
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My son’s time is running out due to a rare disease. The FDA needs to add more clinical trial flexibility March 2, 2023
Rare Disease Day 2023 – A Discussion February 23, 2023
THERANEXUS, BBDF AND CARDIFF UNIVERSITY PRESENT THEIR NOVEL RESEARCH ON BATTEN-1 AND BATTEN DISEASE AT WORLDSYMPOSIUM 2023 February 22, 2023

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