Beyond Batten Disease Foundation

Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.

DONATE

Toggle menu

Skip to content
  • About Us

    • About the Foundation

      • Mission and History
      • Board of Directors
      • Staff
      • Youth Leadership Committee
      • Founders Circle
      • Internships and Service Hours

    • Funds

      • Bind Up Batten
      • Chase The Cure
      • Hugs for Hudson
      • Rare Sisters
      • Sofia’s Dream
      • Tyler’s Mission
      • Will Herndon Fund

    • BBDF’s Role and Impact

      • Accomplishment Timeline
      • The Be Project

    • Contact Us

      Beyond Batten Disease Foundation:

      PO Box 50221
      Austin, TX 78763
      Phone: 512-275-2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Understanding Batten

    • About Batten Disease

      • What is Batten?
      • Diagnosis/Symptoms
      • Prognosis
      • Screening
      • Living with Batten

    • Family Stories

      • Family Videos
      • A Mother’s Story
      • Share your Story
      • Batten Map

    • Contact Us

      Beyond Batten Disease Foundation:

      PO Box 50221
      Austin, TX 78763
      Phone: 512-275-2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Research

    • What We Know

      • State of the Science
      • CLN3 Gene
      • Screening

    • Foundation Driven

      • Our Strategy
      • BBDF 101
      • Research Activities

    • For Researchers

      • About Funding
      • Forms and Instructions
      • Resources

    • Contact Dr. Danielle Kerkovich

      Danielle M. Kerkovich, Ph.D.
      Phone: 202-812-6462
      Email Danielle

  • Get Involved

    • OVERVIEW

      • Donate
      • Create a Fundraising Page
      • Create a Fund
      • Volunteer

    • UPCOMING EVENTS

      • Taking a Swing at Batten
      • Expect Miracles 5K
      • Inspire Run 5K
  • BBDF Blog

News

Beyond Batten Disease Foundation  ⁄  News

Contact Us

  • 512-275-2600
  • info@beyondbatten.org
  • PO Box 50221
    Austin, TX 78763

What’s New?

  • Get Involved: April Fundraising Events March 18, 2019
  • 4th Annual Run to the Sun Fun Run Rescheduled for Friday, Feb. 22, 2019 February 8, 2019
  • BBDF Welcomes Sophia’s Dream February 7, 2019

Join Our Mailing List

Sign up to get interesting news and updates delivered to your inbox.

GO!

Connect with us

  • About Us
  • Services
  • Privacy
Copyright © 2019 Beyond Batten Disease Foundation. All rights reserved.
Website Design by Huckster Design.