Beyond Batten Disease Foundation

Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.

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  • About Us

    • About the Foundation

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      • Board of Directors
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      • Founders Circle
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    • Affiliates

      Hugs for Hudson

      Read Press Release »

      ForeBatten

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    • BBDF’s Role and Impact

      • Overview
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      • Latest Update
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    • Contact Us

      Beyond Batten Disease Foundation:

      PO Box 50221
      Austin, TX 78763
      Phone: 512-275-2600
      Toll Free: 1-877-6BATTEN
      Fax: 512-637-6333
      info@beyondbatten.org

      Submit an Inquiry »

  • Understanding Batten

    • About Batten Disease

      • What is Batten?
      • Diagnosis/Symptoms
      • Prognosis
      • Screening
      • Living with Batten

    • Family Stories

      • Family Videos
      • A Mother’s Story
      • Share your Story
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    • Contact Us

      Beyond Batten Disease Foundation:

      PO Box 50221
      Austin, TX 78763
      Phone: 512-275-2600
      Toll Free: 1-877-6BATTEN
      Fax: 512-637-6333
      info@beyondbatten.org

      Submit an Inquiry »

  • Research

    • What We Know

      • Screening
      • State of the Science
      • CLN3 Gene
      • Drug Targeting the Lysosome

    • Foundation Driven

      • Our Strategy
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    • For Researchers

      • About Funding
      • Forms and Instructions
      • Resources

    • Contact Dr. Danielle Kerkovich

      Danielle M. Kerkovich, Ph.D.
      Phone: 202-812-6462
      Email Danielle

  • Get Involved

    • OVERVIEW

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    • UPCOMING EVENTS

      • HOPE Under the Stars
      • Family Night
      • 3rd Annual A Cure in the Nick of Time
  • Be Project

    • Introducing the

      BBDF BE Project

      a campaign to fund the treatment for Batten disease

      Read More »

    • Who Will You Be?

      • BE an Amazon
      • BE the Change
      • BE a Connector
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    • Contact Us

      Beyond Batten Disease Foundation:

      PO Box 50221
      Austin, TX 78763
      Phone: 512-275-2600
      Toll Free: 1-877-6BATTEN
      Fax: 512-637-6333
      info@beyondbatten.org

      Submit an Inquiry »

News

Beyond Batten Disease Foundation > News

Contact Us

  • 512-275-2600
  • info@beyondbatten.org
  • PO Box 50221
    Austin, TX 78763
  • Mon to Fri - 8:30am to 5:30pm

A 501(c)(3) tax-exempt organization

Latest from the Newsroom

  • Research Update from Dr. Marco Sardiello June 1, 2017
  • May Newsletter May 30, 2017

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