Host an Event

Beyond Batten Disease Foundation is grateful for the opportunity to work with individuals and organizations in the community who want to host thier own fundraisers and events to help us complete our mission of eradicating juvenile Batten disease.

Some examples of successful third party events that our supporters have organized are lemonade sales, fishing and golf tournaments, and more. The sky is the limit! Think about your own interests. Is there a way to turn something you’re passionate about into an opportunity to help children affected by Batten? If so, we encourage you to do the following:

If you would like to have your own event to raise funds for the Foundation, please complete the following:

  1. Review a copy of our third-party event guidelines
  2. Download a registration form to complete and return for approval.

If you have any questions or need any additional information, please email