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  Beyond Batten Disease Foundation:
  
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  Beyond Batten Disease Foundation:
  
  3305 Steck Ave., Suite 200
  Austin, TX 78757
  Phone: 512.275.2600
  info@beyondbatten.org
  
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The Herndon Family Story

Beyond Batten Disease Foundation ⁄ Family Stories ⁄ The Herndon Family Story

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512.275.2600
info@beyondbatten.org
3305 Steck Ave., Suite 200, Austin Texas, 78757

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What’s New?

THX Pharma and the Beyond Batten Disease Foundation Announce the Grant of a European Patent Protecting the Use of Batten-1 in Juvenile Batten Disease (CLN3) September 16, 2026
THX Pharma, BBDF and Biocodex Announce Regulatory Submissions for the Phase 3 Clinical Trial of Batten-1 in Juvenile Batten Disease (CLN3) September 4, 2026
BBDF-Funded Clinical Recommendations Mark a Major Milestone for CLN3 Disease Care July 16, 2026

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