Beyond Batten Disease Foundation

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      3305 Steck Ave., Suite 200
      Austin, TX 78757
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      info@beyondbatten.org

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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

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The Benson Family Story

Beyond Batten Disease Foundation  ⁄  Family Stories  ⁄  The Benson Family Story

2 thoughts on “The Benson Family Story”

  1. Pingback: The Benson Family Story | Batten Blog
  2. Pingback: Beyond Batten Disease Foundation and the New York Stem Cell Foundation Chosen as a National Innovator by the Milken Institute as They Partner to Find a Cure for Juvenile Batten Disease - Beyond Batten Disease FoundationBeyond Batten Disease Foundation

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Contact Us

  • 512.275.2600
  • info@beyondbatten.org
  • 3305 Steck Ave., Suite 200, Austin Texas, 78757

Connect With Us

What’s New?

  • My son’s time is running out due to a rare disease. The FDA needs to add more clinical trial flexibility March 2, 2023
  • Rare Disease Day 2023 – A Discussion February 23, 2023
  •  THERANEXUS, BBDF AND CARDIFF UNIVERSITY PRESENT THEIR NOVEL RESEARCH ON BATTEN-1 AND BATTEN DISEASE AT WORLDSYMPOSIUM 2023  February 22, 2023

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