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News
March 2013 Newsletter
Posted in Newsletter Archives
Nonprofit Hosting Third Annual Overnight Relay Run to the Sun Relay – April 20-21, 2013
Beyond Batten Disease Foundation is pleased to announce its 3rd Annual Run to the Sun Relay that will take place April 20-21. Run to the Sun is an overnight, long distance relay that begins at Enchanted Rock State Park and…
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A Mother’s Story
The Blind Vest, by Charlotte Benson
Have you ever wondered what it would be like if the whole world knew your pain? Would you feel exposed or liberated? Would you be embarrassed or relieved? Would others treat you differently?…
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Posted in A Mother's Story, News
Collaborative CNS Screening Initiative
Collaborative CNS Screening Initiative (CCSI) Aims to Share Knowledge and Speed Drug Discovery. The Alzheimer’s Drug Discovery Foundation (ADDF), Beyond Batten Disease Foundation (BBDF) and the National Multiple Sclerosis Society today announced a funding collaboration to support the creation of…
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Nonprofit Funders Unite to Accelerate Fight Against Batten Disease, Granting $1 Million for Research to Develop Treatment and Cure
AUSTIN, TEXAS (February, 2013) The Batten Disease Support and Research Association (BDSRA) and Beyond Batten Disease Foundation (BBDF), working together in close partnership with more than 20 other nonprofits around the world, today announced grants totaling almost $1 million for…
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