Luke and Rachel Batten Foundation

The Luke and Rachel Batten Foundation was formed in 2001 to honor Luke and Rachel Watson. They, along with thousands of other children in our country and around the world, are afflicted with a fatal degenerative neurological disease called Batten Disease.

Luke was born September 17, 1992 a healthy happy baby. Sixteen months later on January 28, 1994 Rachel arrived. The Watson family was complete. It was in November of 1998 that Luke began having trouble with his eyes which started a journey ended with the diagnosis of Juvenile Batten Disease in February of 1999.

In June of that same year Rachel was also diagnosed. This merciless disease has caused Luke and Rachel to go blind, have seizures, and regress in skills they had once mastered. Every day they struggle to do normal daily activities. We have been working with doctors and researchers around the country since our formation.

Great strides in research have been made since that time, hopefully in a small part because of our efforts. We are pleased to team with the Beyond Batten Foundation to continue and consolidate efforts to find a treatment for Luke and Rachel as well as the many others who suffer from this terrible illness.

Luke and Rachel Batten Foundation is a registered 501 (c) 3 organization with Tax ID # 32-0011285

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Casino Night

Hosted by Kelly and Tom Gaines, this annual event was a HUGE success!

With a Great Gatsby theme, LRBF supporters came out dressed to impress! Thank you to all who came out for Casino Night!

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LRBF Annual Luncheon
Getting on Board for Batten
February 6, 2015
Run to the Sun 2015
LRBF
April 11-12, 2015 Find out more »
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Thanking our Supporters
  • Texas Oilman's Charity Invitational Fishing Tournament’s generous donation of $20,000
  • 2014 Annual Luncheon Raised over $30,000 to Support JNCL research
  • Tom and Kelly Gaines' Casino Party 2013