Where There’s a Will, There’s a Way
Imagine being told your seemingly healthy six year old son has a rare, degenerative brain disease, that you have never heard of, that was stealing his vision and would eventually rob him of his mobility, speech and cognitive skills and life. A genetic disease called juvenile Batten that had no treatment, no cure and is always fatal. Missy and Wayne Herndon received this diagnosis in June of 2009 for their son Will. The Will Herndon Research Fund was created in August of that same year through a partnership with The Benson Family and Beyond Batten Disease Foundation with a vision of a shared mission: Eradicate Batten Disease and find a treatment within their children’s lifetime.
So today, 8 years later, The Herndons continue raising critical funding and awareness for the disease in their hometown of The Woodlands with a goal to SAVE WILL and the hundreds of other children like him. Will you help?