By KVUE staff on KVUE.com

published January 13, 2012

An Austin father is on a desperate search to find a cure for a disease most people know very little about.

It’s called Batten Disease. It begins in childhood and is often fatal. Now his efforts have gotten the attention of country music superstar Keith Urban.

Co-founder of the Beyond Batten Disease Foundation Craig Benson spoke to KVUE about his daughter, who suffers from the disease.

To help out, you can attend a special event at the Austin City Limits Moody Theater. It’s called Date Night with Keith Urban. It’s taking place on Friday,Feb. 10 at 9 p.m.

http://www.kvue.com/story/entertainment/2014/05/20/2296918/