Featured Fundraiser

On Sunday October 21st, 25 girls gathered in Grace and Brynley May’s front yard to show support for one of their school mates. Each girl baked beautifully decorated trays of delicious cookies, cupcakes and brownies and delivered them to tables lining the front yard. Fourth grade girls welcomed neighbors along the sidewalk and flagged down passing cars with homemade signs until every baked goodie was sold.

The girls awarded Beyond Batten Disease Foundation $1,000 with their loving and supportive efforts to help a friend. Thank you so much to all who participated, and especially Grace and Brynley for organizing the bake sale and offering their home.

Featured Fundraiser

The Gummy Bear Gourmet Lemonade Stand

Every child loves a lemonade stand! On August 10th, five precocious children attending The Gummy Bear Gourmet cooking camp, under the direction of Ashley Crider, struck out to put their love of squeezing lemons to the test.

“Of all the fabulously clever, extravagant, and creative recipes the children were making, they liked squeezing lemons the very most. They could have juiced lemons for the full three hours”, Ashley reported.

Along with her two children, Steven age 12 and Charlotte age 10, Ashely took the children’s enthusiasm for squeezing lemons as an opportunity to teach them how to make lemonade and how to make a difference. The class lovingly gave away free lemonade at their stand on Vista Lane in West Austin while accepting donations to benefit Beyond Batten Disease Foundation.

Ashley has been a shining example of a loyal supporter and a faithful volunteer since the inception of the foundation. On behalf of BBDF, we’d like to extend our gratitude to Ashley for her continued contributions and for fostering community support among children.

Date Night with Keith Urban Auction Preview



Formula 1 Package

  • 2 premium reserved seats for all three days of the Formula 1 United States Grand Prix™ with on-site parking pass
  • 2 VIP reserved tickets to a concert of choice in the Grand Plaza Amphitheater
  • A “Hot Lap Lesson”: 3 laps on the full Circuit of The Americas Grand Prix course with a professional driving instructor.Instructor will provide driving tips between laps in an effort to improve your performance.Lap times will be recorded so you can compare your times to those of Formula 1 drivers. Includes photo at finish line


Girls’ Dream Package

  • 4 Lake Austin Spa Resort’s “Full Day Away” Spa Packages. East guest may choose from 2 rejuvenating 50-minute package spa treatments and one indulgent 80-minute package spa treatment. Package includes spa lunch, spa gift and gratuities
  • One Chanel Mademoiselle bag
  • Full makeovers for 4 at Ron King Salon. Package includes cut, color, makeup, and shellac manicure for 4 guests
  • A $2,500 gift certificate to The Menagerie, Austin’s premier fine jewelry, gift, and tabletop salon
  • Private Luncheon for 4 with a Fashion Presentation at Neiman Marcus Austin and 4 $250 gift certificates



Cabo Luxury Home

  • 6 day and 5 night stay at Casa Malibu in Pedregal, Cabo San Lucas, Mexico. Click HERE for more details on the luxury home
  • Gated, guarded community
  • 5 bedroom, 5 bathrooms plus 2 half baths
  • Sleeps 12-14 and perfect for 2 families or 5 couples
  • Flat Screen TVs, Satellite TV, Wireless Internet
  • Pool, Jacuzzi, Outdoor Bar
  • Dates of stay will be arranged through the property owner. The package excludes Easter (April 2-9, 2012) and Thanksgiving (November 19-26, 2012) dates


Louisiana Alligator Hunt

  • A thrilling alligator hunt and saltwater fishing adventure in the Louisiana bayou for up to 8 people
  • Package includes a 4 day and 3 night excursion, accommodations, some meals, guide service and alligator hunting tags
  • Great for a weekend with friends or a father and son adventure!
  • Dates of the package must fall within Louisiana’s alligator hunting season and are to be arranged through Beyond Batten Disease Foundation


Jack Ingram Private Concert and Dinner in Austin

  • Country music star Jack Ingram will perform a private, intimate concert for you and your friends in your Austin area home
  • The package includes a catered gourmet dinner from 34th Street Cafe and flower arrangements from David Kurio Designs


Meet Keith Urban

  • A once-in-a-lifetime opportunity for you and a friend to go behind the stage, meet, and have your picture taken with Keith before the concert on February 10, 2012
  • What could make this package even better? One autographed guitar with a personal message from Keith!
  • Note: Must be present at the event to participate


Aspen Mountain Paradise

  • 7 day and 6 night stay at a new, gorgeous home located in Snowmass Village. Click HERE for more details on the home
  • Ski access via a trail out and down the street in (limited to ability)
  • 4 bedrooms and 4 private baths comfortably sleeps up to 10 people
  • Fireplace, hot tub, Jacuzzi and steam showers
  • Large outdoor deck areas for entertaining and enjoying the spectacular views
  • Large flat screen TVs and wireless internet connection
  • Dates of stay to be arranged with the property owner. The package excludes Christmas, Thanksgiving, Spring Break, and Fourth of July dates


UT Austin President’s Package

  • 2 VIP tickets to the President’s Suite for any home game of your choice! A Longhorn football games is the hottest ticket in town, and the President’s Suite is the best seat in the house. President Bill Powers invites the high bidder and their guest to a Longhorn home football game in the 2012 season
  • Reserved VIP parking
  • The package also includes 2 Southwest Airlines round-trip airfare tickets!


Texas A&M Chancellor’s Package

  • Be the Chancellor’s guest at the Texas A&M vs. LSU game on October 20, 2012 and receive 2 VIP tickets to sit in the Chancellor’s Box, 10th Floor, Kyle Field
  • Package includes the Presidential Pre-game Buffet and one parking pass
  • Tickets and parking pass will be mailed to recipient after September 1, 2012


Snowmass Village Getaway

  • 7 day and 6 night stay in a lavish, 6-bedroom mountain home near Aspen
  • Spacious home accommodates up to 10 people
  • 2 cars are available during your stay and shuttle transportation to and from the airport will be provided
  • Gourmet kitchen, a fitness room and a full game room with a bar
  • Natural landscaping with wildflowers and a snowmelt driveway
  • Dates of stay to be arranged with the property owner. The package excludes Christmas, Thanksgiving, Spring Break, and Fourth of July dates


Duck Hunting Package

  • 4 day and 3 night stay at Wild Wings, a private hunting lodge in Stuttgart, Arkansas, the undisputed Duck Hunting Capital of the World
  • Package includes all hunting arrangements for 4 hunters and accommodations for up to 4 additional family members
  • Lodge accommodations and some meals included
  • Dates to be coordinated with lodge owner and must fall within duck hunting season



French Chateau Escape

  • A unique opportunity to spend five days/nights in a stunning Gustavian cottage on the property of a fabulous privately owned French chateau located in the spectacular Loire Valley, 2 hours southwest of Paris
  • The cottage has 4 bedrooms and 4 bathrooms and sleeps 8 people
  • Enjoy visiting the other chateaux in this famous wine region, such as Chambord and Cheverny, bike riding, and, of course, the food and wine
  • The package includes weekend dinners with the owners in their exquisite chateau
  • Available between the months of May & July


Diamond Package

  • 18K White Gold Diamond Loop Earrings, 5.06 Total Diamond Weight (TDW), Round Brilliant Cut (RBC)
  • 14K White Gold Diamond Necklace, 13.72 Total Diamond Weight (TDW), Round Brilliant Cut (RBC)


Cowboys Luxury Suite

  • Watch the Cowboys play against the Cleveland Browns from the comfort of a luxury “Ring of Honor” suite
  • The suite package includes tickets and parking for 18 people
  • This game will feature Colt McCoy’s return to Texas
  • The auction winner will receive an official certificate to redeem, along with complete instructions and contact info
  • Date of game TBA


Rare Disease Day

In honor of Rare Disease Day, the following retailers and businesses have signed on to donate a portion of their proceeds on February 26, 2011 to the Beyond Batten Disease Foundation:

In Austin, Texas:
1379 Family Sports Shop
Adelante Boutique
Austin Pilates Barn (Feb. 24 and Feb. 25 only)
Briley’s Upholstery Shop
Corefit Training
Four Hands Furniture
Girl Next Door
Hayden Avery
Hutson Clothing Co.
Kids Cook
Mellow Johnny’s
The Menagerie
Monogram Lady
Over the Rainbow
Perri Berri
Reform Pilates
Tarrytown Nails
The Tavern (922 W. 12th St.)
Touch of Sass
Tracy Bethel Skincare
Valentines Too
Wendow Fine Living
Wildflower Organics

In Dallas, Texas
Chick-Fil-A at 12120 Inwood Road
Pinkberry at 5959 Royal Lane
Sammy’s BBQ

In Houston and The Woodlands, Texas:
Campioni Restaurant
Sweet Lola Yogurt Bar
Thompson + Hanson
Yvette Williams, Mary Kay Sales (Feb. 20 to Feb. 26)
www.marykay.com/ywilliams2.com or 281-686-1301

In Baton Rouge, Louisiana
By Design Interiors (on 2/25 only)
Fireside Antiques
Red Onion
Samir Oriental Rugs
Stephen Black Ltd.
Taylor Clark Galleries (on 2/25 only)

Thank you to our sponsors who went Above and Beyond

A special THANK YOU to all the sponsors of Above and Beyond: An Evening of Hope, October 24, 2010.

  • Paige and Jamil Alam
  • Stacy and Mike Albrecht
  • Kristin and Wick Alexander
  • Anonymous
  • Austin Sonic Drive-In
  • Elizabeth and Don Baker
  • BBVA Compass
  • Laura and Kyndel Bennett
  • Elaine and Britt Benton
  • Diane and Curt Bilby
  • Brooke and Braedon Box
  • Elise and Rob Bridges
  • Jeri and Vaughn Brock
  • Jennifer Brown
  • Jill and Buster Brown
  • Sabrina and Jay Brown
  • Janie and Casey Brydson
  • Bryan and Donna Campbell
  • June and Mark Chandler
  • Melanie and Taylor Cheek
  • Gay and David Clifton
  • cohn & wolfe
  • Lesley Link Collins
  • Sara and Matt Crawford
  • Ashley and Steven Crider
  • Beth and Kelly Cunningham
  • Kelley and Tom Daniel
  • The Daves Family
  • Dean-Jett Custom Clothier
  • Amy and Michael Deane
  • Darby Denison
  • Susanne and Colby Denison
  • Jacy and John Donovan
  • Annie and Ward Downing
  • Amy and Dylan Drummond
  • Beth and Marshall Durrett
  • Leslie and Brandon Easterling
  • Amy and Chris Ellis
  • Endeavor Real Estate Group/ Alam & Ellis
  • Cari and Monte Ezell
  • Kristin and Richard Ernst
  • Lynn and Bill Fowler
  • Caroline and Sam Goodner
  • Natasha and Gavin Gray
  • Karen and Mark Greiner
  • Joanne and Brian Grigsby
  • Stephanie and Mark Hamilton
  • Stephanie and Christopher Hamm
  • Kristen and Ben Hanson
  • Karen and Bob Harrell
  • Angela and Ken Hashman
  • H-E-B
  • Kate and Robert Hersch
  • Courtney and Charlie Hill
  • Julia and Randy Howry
  • Independent Bank
  • Shannon and Kyle Janek
  • Lisa and Ross Jessup
  • Suzanne Kho & James Werner
  • Dana and Jeff Kocurek
  • Julie and Kelly Kocurek
  • Mary and Chico Korth
  • Margaret and Marshall Kuykendall
  • Stephanie and Zach Landry
  • Julie and Derek Lewis
  • Charlotte Carothers Lowder/ Austin White Lime Company
  • Clayton and Andrew Maebius
  • Lisa and Maury Magids
  • Robyn and Craig Malloy
  • Sarah and Jimmy Mansour
  • Janyce and Andy Marcus
  • Jenifer and John Martin
  • Lanette and Matt Matthews
  • Trish and Kit McConnico
  • Carrie and Jeff McDowell
  • Rebecca and Mike McKee
  • Carlotta and Bill McLean
  • Fredericka and David Middleton
  • Polly and Greg Moore
  • Kay and Eric Moreland
  • Carol and Will Muschamp
  • Ellen and Michael Navarre
  • Anna and Jason Near
  • Marnie and Dave Near
  • Susan and John Nicklos
  • Kelley and Ted Nitka
  • Monique and Scott Norman
  • Robyn and John Pesce
  • Monika and Billy Phenix
  • Amy and John Porter
  • Jocelyn Potts and Mark Johnson
  • Jackie and Eric Price
  • Lucy and Bill Reagan
  • Cheryl and Mike Renna
  • Leigh and Ben Richards
  • Reagan and Chip Rives
  • Brad Robinson
  • Jenni and Todd Rozas
  • Catherine and Charles Sansbury
  • Scott, Douglass & McConnico, L.L.P.
  • Sylvia and Dan Sharplin
  • Laura and Rick Singleton
  • Anne and Richard Smalling
  • Lindsay and Ford Smith
  • Hillarey and Ryan Squires
  • Yuniedth and Jennings Steen
  • Dinah and Ryan Street
  • Rebecca and Andy Thomas
  • Dawn and Lance Thompson
  • Crystal and Todd Tidmore
  • Michelle and Paul Tobias
  • Stacy and Mike Toomey
  • Caroline and John Trube
  • Elisabeth and Alex Tynberg
  • Ali and Trey Watson
  • Catherine Ann and Jim Welch
  • Carrie and Curt Wilkin
  • Shannon and Jimmy Windham
  • Suzie and Eric Wright
  • YPO Spouse Forum

Rare Disease Day – Retailer Support

In honor of Rare Disease Day on February 28th

The following retailers are donating a portion of their proceeds to the Beyond Batten Disease Foundation
Rare Disease Day

1379 Kids • 2727 Exposition Blvd. • 2/27
Austin Pilates Barn  • 1600 Northwood Road • 2/23 & 2/26
Bella Mi • 1601 W. 38th Street • 2/27
Bettysport • 916 W. 12th Street • 2/27
Feather Your Nest • 3500 Jefferson St. • 2/27
Hayden Avery • 1515 W. 35th Street • 2/26 & 2/27
Lee’s Meat Market • 1601 W. 38th Street • 2/26 & 2/27
Teo’s • 1206 W. 38th Street • 2/27 & 2/28

A Bientot •3268 Westheimer Road • 2/27
River Oaks Bookstore • 3270 Westheimer Road • 2/27
Thompson Hanson Home and Garden Shop • 3600 West Alabama • 2/27 & 2/28
Tiny Boxwood’s Café • 3614 West Alabama • 2/27 & 2/28