Robert Price hosted a golf tournament at Reedy Creek Golf Course in Four Oaks, NC that raised close to $10,000 for Batten research! We are so grateful to Robert and all who participated and sponsored this event. Events like these move us closer to our goal of funding the treatment that is now in sight for Batten disease!
We’re so grateful to Weston Ezell and his friend, John, for asking for donations to BBDF in lieu of gifts for their birthdays! Lemonade stands, bake sales, and other fundraisers, such as Weston and John’s, support Be The Change, a component of The Be Project, which is BBDF’s campaign to raise $6 million in 24 months to fund the treatment that is now in sight for Batten disease! Weston’s effort was published in Life in the Heights magazine in November.
The BBDF Youth Leadership Committee has been hard at work on their BUZZ campaign! The committee places swarms of cut-out bees in the yards of unsuspecting Austin residents. In order to have them removed, a donation is encouraged. If you’d like to make a donation to their campaign, you can do so HERE.