Lack of awareness is one of the largest obstacles standing in the way of finding a cure for Batten disease.
You can help change that.
Spread the word about juvenile Batten disease and BBDF using the tools below. Our goal is to increase awareness and support for our mission to find a cure.
- Like our Facebook page
- Update your Facebook status to encourage your FB community to learn more about Batten disease by visiting www.beyondbatten.org
- Post your motivation for fighting Batten ask others to share your story
- Encourage others to visit the BBDF Facebook page and “like” and share our posts. The more activity a post gets, the more people will see it
- Change your Facebook profile picture or cover photo and spread the message of hope for a future where Batten disease no longer exists
- Add a link to www.beyondbatten.org in your signature line to increase visitors to our website
- Use #BeyondBatten to let us know how you are getting involved in the fight against Batten, and to see what others are doing to make a difference
- Follow @BeyondBatten and encourage your Twitter followers to do the same
- Favorite or retweet our posts
- Follow @BeyondBatten and encourage your Instagram followers to do the same
- Use #BeyondBatten to share photos of what you are doing to spread the world and to see what others are doing
Batten Blog
- Follow the Batten Blog for the latest Batten updates
- Share your story. For submission details, click here
- Comment on and share our posts
YouTube
- Subscribe to our YouTube channel to get updates when new research, event or family story videos have been posted. Share these videos with your friends and family
What to Share:
- Family Stories and Research Videos
- Your favorite “A Mother’s Story”
- Words of Encouragement