28 Aug 2020 BBDF-101 Announcement August 28, 2020 BeyondBatten Research, News, Press Releases We are excited to announce the following major milestone for BBDF! The FDA has awarded Orphan Drug and R...Read More
26 Aug 2020 The FDA awarded Orphan Drug and Rare Pediatric Disease designations to Beyond Batten Disease Foundation for BBDF-101 August 26, 2020 BeyondBatten Research, News The FDA has awarded Orphan Drug and Rare Pediatric Disease designations to Beyond Batten Disease Foundati...Read More
4 Apr 2020 Danielle Kerkovich is Recognized April 4, 2020 BeyondBatten Research, News BBDF's principal scientist, Danielle Kerkovich, recieves recognition for her paper as one of the most rea...Read More
18 Mar 2020 Judy and Courtney Stecker establish the Charles “Wheeler” Stecker Research Fund March 18, 2020 BeyondBatten News, Family Stories Judy and Courtney Stecker establish the Charles "Wheeler" Stecker Research Fund to join forces in raising...Read More
12 Dec 2019 BBDF-101 Announcement December 12, 2019 BeyondBatten Research, News, Press Releases We are excited to announce the following major milestone for BBDF! Theranexus, a publicly-traded European...Read More
7 Nov 2019 A Mother’s Story November 7, 2019 BeyondBatten A Mother's Story 2 Photo by Catherine Sanderson | catherinesanderson.comOn March 28, 2008, my husband Craig and I received t...Read More
14 Aug 2019 2nd Annual Bind Up Batten Golf Charity August 14, 2019 BeyondBatten News Bind Up Batten brought together the community on July 20, 2019, for the 2nd Annual Batten Disease Golf Ch...Read More
2 Jul 2019 We are Austin Interview with Garland Benson July 2, 2019 BeyondBatten News, BE Project We Are Austin did an interview highlighting Garland Benson and the Be a Hero Campaign Check out his in...Read More
21 May 2019 People Magazine: Garland’s One Million Dollar Story May 21, 2019 BeyondBatten News People Magazine has just published an article highlighting Garland's quest to raise a million dollars for...Read More
16 May 2019 Beyond Batten Funded Research Professor Awarded May 16, 2019 BeyondBatten Research, News Congratulations to Marco Sardiello, Ph.D. Assistant Professor Molecular &Human Genetics Department, B...Read More