News

Faster DNA Testing Helps Diagnose Disease in NICU Babies

by Alice Park on healthland.time.com

Fifty hours. That’s how long it now takes to decode and interpret a newborn baby’s genome — an undertaking that used to take weeks, or even months. And those two days can mean the difference

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Posted in Media Coverage

December 2012 Newsletter

Please CLICK HERE to view our newsletter archive from December 2012.

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Posted in Newsletter Archives

Featured Fundraiser

On Sunday October 21st, 25 girls gathered in Grace and Brynley May’s front yard to show support for one of their school mates. Each girl baked beautifully decorated trays of delicious cookies, cupcakes and brownies and delivered them to

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Posted in Other News

A Mother’s Story

With the holidays approaching, the children and I have decided to decorate our front yard with characters from our favorite Christmas story…….Dr. Seuss’ How the Grinch Stole Christmas. Twelve years ago, my brother, John, made a Grinch who sat on

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Posted in A Mother's Story

Austin Golfers Join Fight Against Batten Disease at Fourth Annual Hope on the Green Tournament

AUSTIN, TX — Austin-area golfers are getting ready to take a swing at juvenile Batten disease during the Fourth Annual Brake Specialists Plus “HOPE on the Green” Charity Golf Tournament on Friday, October 19 at Grey Rock Golf Club.

The

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Posted in Press Releases

Upcoming Events

Run to the Sun

April 20-21, 2013 Find out more »
HOPE Under the Stars

September 21, 2013 Find out more »
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